FASD – Page 2

Morasha’s topsy turvy invisible world

October 7, 2009 By Administrator

Morasha Rael Winokur rocks. She’s authentic. Morasha knows that her brother’s constant babbling isn’t his fault, but sometimes she just wishes she could be a regular eleven-year-old girl. Not exactly possible, when brother Iyal, born with FASD, is unpredictable and emotional no matter where he is. At times, part of her wishes he would just shut up, while another part says, “But deep inside, I love him so much.”

There are plenty of “That’s not fair” times for Morasha, but also amazing amounts of family love, insight, and support. And an FASD service dog named Chancer for Iyal. With Chancer, Morasha says, she has a chance for a life of her own.

Read this book and I guarantee you’ll never think the same about the outcome of drinking while pregnant. But it’s much more. It’s an opportunity to meet a delightful family that advocates for children with FASD.

Morasha’s book is the “must have” of the 2009 holiday season and the coming year. A perfect gift, regardless of whether the reader has family or friends with special needs.

Must-see video on Fetal Alcohol Syndrome

August 24, 2009 By Administrator

Donnie Kanter Winokur just announced that the CDC has produced two videos of her family as it reveals some of the aspects of Fetal Alcohol Syndrome/Fetal Alcohol Spectrum Disorder. Even if you don’t know anyone with this affliction, it’s well worth watching. Here’s what she says in her message to friends and family:

The CDC produced two powerful videos about living with FASD. Our family was fortunate to be featured in these pieces. You can find them in two different sections on their website. I am partial to the longer version only because you can see more of our family! I think you’ll find these well worth watching. Thanks always for your support.

You can find the videos here, and they also have closed captioning.

http://www.cdc.gov/ncbddd/fasd/videos/index.html

Kulp and Winokur: Advocates for people struggling with FASD

August 23, 2009 By Administrator

Jodee Kulp
Hidden disabilities ravage our landscape – are we brave enough to confront reality in supporting change and compassion? This is the header for Jodee Kulp’s blog. She’s a powerful advocate for people suffering from the ravages of Fetal Alcohol Spectrum Disorder.

Building Better Baby Brains
Every year on September 9th, International FASD Awareness Day is observed. Proclamations are issued in countries, states, provinces, and towns all around the world. Bells are rung at 9:09 a.m. in every time zone from New Zealand to Alaska. People all around the world gather for events to raise awareness about the dangers of drinking during pregnancy and the plight of individuals and families who struggle with Fetal Alcohol Spectrum Disorders (FASD). The first FASDay was celebrated on 9/9/99.

Kulp is a publisher of books on hidden disabilities, and a digital deslgner. And much more.

Presenter/Keynote Speaker:
International Association of Small Business
Families at Risk Conferences and Institutes
Verbal Abuse Workshops
Allegations Prevention and Survival
Fetal Alcohol Syndrome
Today is a Day
Creative Strategies for Teaching FASD children
Home school teacher

Donnie Kanter Winokur
Next week, she publishes My Invisible World, by Morasha Winokur, whose adopted brother, Iyal, has FASD. I have read the manuscript. It’s an excellent, moving, funny, touching book by an authentic young woman. Morasha’s mother, Donnie Kanter Winokur, is a presenter and speaker regarding FASD. Here’s one of her articles.

I hope to meet Donnie and Jodee Kulp in person. Two powerful, tireless advocates offering help for anyone suffering from the results/ravages of Fetal Alcohol Spectrum Disorder. I’ll keep you posted as to when My Invisible World is published.