By Kayla Bugher
My daughter, Delaney Lynn Bugher, turned 4 years old on August 3rd. She has an older sister, Audrie, a twin brother, Gavin, and a baby sister, Seeley. When Delaney was born there were problems with her delivery. She was the second of twins born and there were complications with the umbilical cord. [...]
By Monique Volkman
When Alyssa Evon Davilla was 8 months old, she began having seizures, and at the age of 1 year she was diagnosed with a rare chromosome abnormality. She is now 13. Due to the chromosome abnormality she has developmental delays, sleep apnea, asthma, mild cerebral palsy, and seizures. She is also speech delayed [...]
Elleanna is a five-year-old little girl who loves to entertain her family and friends in song, dance, and make believe.
Most people only ever see that happy little girl who loves life. However, hidden behind that smile, is an innocent child that knows what it means to be strong.
At 11 weeks old, Elleanna began her [...]
Guest post by Laura Henderson
My son, Shane Henderson, was born Autistic. He was diagnosed at 18 months. The diagnosis would have come sooner, but there was a fire and our home was condemned. We lived in a hotel for a couple of months while looking for a new place and unfortunately had to delay some [...]
By Leslie Mann
I am currently trying to raise funds for a service dog for my disabled nine-year-old son, Devon Mann-Leathers. My son has a rare genetic disorder called Kabuki Syndrome. This disorder causes him to have seizures, autistic behavior, hypotonia, depression and anxiety, insomnia, developmental delays . . . and the list goes on.
I have [...]
By Karen Bidwell
Hi, my name is Karen Bidwell and my wonderful husband is named Josh. We have two beautiful children, Tyler - five, and Micah - three. Josh and I have been married 15 years and cherish every moment we have with our son and daughter! Just a little less than six years ago, we [...]
Monday, January 17, 2011, Donna Sauraq Erickson of Unalakleet, Alaska, posts the following on her Facebook wall:
I remember the day of my son’s diagnosis.
Autism.
The Doctor’s eyes,
His voice,
Empathy & compassion.
“Lifelong disability”
The nurse’s station in Nome.
No cure.
How his words “I’m sorry” still sting.
Silence.
Unbelievable.
I held my struggling son close, hoping they were wrong.
What was autism?
I had never [...]
By Staci Anderson
Leah was born October 16, 2006: a healthy baby girl. She was happy and easygoing, growing normally, and reaching her developmental milestones on time. At her four-month well visit she was pronounced perfectly healthy, but shortly after this, things began to change. She was fussier. She cried more. It was not as easy [...]
By Carolina Davies
This handsome four-year-old boy with a twinkle in his eye and a bright smile is my hero.
This is because he was born with two very rare chromosome disorders: 9p minus and 8q duplication. Both these disorders combined has left Eddie mentally and physically disabled. Unable to walk or talk, Eddie faces many [...]
