Familiar with these disabilities?
March 16th, 2010
Perhaps you’ve heard of most of the disabilities listed below, and perhaps one or more of them have touched your life.
A couple of years ago I became webmaster for 4 Paws for Ability, a nonprofit that trains service dogs for people with disabilities. Mostly children.
One of my jobs is to take the parents’ fundraising requests and take them, and the pictures they send, and upload them to a special page. I decided to list, at the bottom of the page, all of the disabilities and diseases that came with these special people.
The list is huge. Tonight, I decided I would take the existing list and post it so you could see what so many families face these days, and how important it is to consider how each of us can, in any way possible, be of support to these special needs:
ADD. ADHD. Adrenoleukodystrophy. Agenesis of the Corpus Callosum (ACC. Angelman Syndrome. Apraxia. Arthrogryposis. Aspergers Disorder. Asthma. Ataxia. Autism. Bilateral Club Feet. Bipolar Disorder. Bone Disorder. Brain damage from birth. Cardiomyopathy. Cerebral Palsy. Chiari I malformation. Chromosome 18 q- Syndrome. Communication Disorder. Cortical Dysplasia. Crouch Gait. Developmental Delays. Dravet Syndrome. Encephalitis. Epilepsy. Fetal Alcohol Spectrum Disorder. Fine Motor Delays. Fragile X. Gastroschsis. Global Developmental Delay. Hydrocephalus. Hypotonia. Legal blindness. Idiopathic Infantile Spasms. Impulse Control Disorder. Intractable Epilepsy. Ischemic stroke. Laryngomalacia. Lennox Gastaut Syndrome. Mental Retardation. Metachromatic Leukodystrophy. Microcephaly. Mitochondrial disorder. Mood Disorder. Multiple Birth Defects Syndrome. Myoclonic Astatic Epilepsy. Non-Progressive Encephalopathy. Obsessive Compulsive Disorder. Ocular Motor Apraxia. Osteogenesis Imperfecta. Osteoporosis. Parkinson’s. Patent Ductess Arteriosis. PDD-NOS. Pertussis. Pervasive Developmental Disorder. Pituitary Brain Tumor. Phelan-McDermid Syndrome. Polymicrogyria. Post Traumatic Stress Syndrome. Profound ADHD. Proteus Spinal Meningitis. Pschomotor Retardation Epilepsy. Refractory Epilepsy. Respiratory Distress Disorder. Restless Leg Syndrome. Retts Syndrome. Myofacial Pain Syndrome. Scoliosis. Seizure Disorder. Sensory Integration Dysfunction. Sensory Processing Disorder. Severe Anxiety Disorder. Severe Intractable Seizure Disorder. Severe Motility Disorder. Severe Sensory Integration Disorder. Shaken Baby Syndrome. Speech Apraxia. Smith-Magenis Syndrome. Spina Bifida. Temperature Instability. Torticollis. Traumatic Brain Injury. Trisomy P Syndrome Tuberous Sclerosis. Ventricular Septal Defect. Vesticoureteral Reflux.
On March 4, 2005, we were overjoyed to welcome our second beautiful son, Joshua, into our family. Around the time of Joshua’s first birthday, however, we started to notice elements of his development which caused us some concern. He was not speaking, and was not responding to us when we spoke to him. His behavior seemed different than other children his age. Over the next few years, we walked through the long, difficult journey of seeking answers to the questions looming in our minds. What was afflicting our son? And what could we do to help him?
Joshua is an affectionate little boy who likes to hug and snuggle. He loves letters and numbers and enjoys coloring, climbing, and running. He also has many struggles which affect his life and the life of our family on a daily basis. Autism makes it difficult for Joshua to focus, communicate, and process information.
As Joshua’s parents, our goal is to fight this disease alongside him by providing all the help we possibly can. Speech and occupational therapy sessions at Joshua’s special preschool and our local hospital have made some improvements in his ability to communicate with us.
What choices do parents have when they discover their child is autistic? That the child can’t communicate well with anyone, that socially the child is in another world, and that this beautiful child has no understanding of words like “safety,” “home,” “name,” etc? And that for parents, the words “sleep” and “rest” may become strangers, while “stress” becomes their close companion?
Safety issues present major challenges. Some nights Bianca has trouble falling asleep, or wakes up in the middle of the night and wanders around the house and kitchen. Even though the Merinos have an alarm system, her parents are always afraid that they might be in a deep sleep and unable to hear her.
Usually sweet and cooperative, Bianca can change moods unexpectedly. No one knows why. According to nonprofit 4 Paws for Ability, a well-trained autism service dog helps in this and many other areas, and 4 Paws has a high success rate training dogs and families. Convinced that the child and dog will form a close bond, her parents also believe that this new family member will reduce the stress for everyone.
4 Paws for Ability strives to provide service dogs to families and children that struggle with life’s daily challenges and who would otherwise be turned away by many other agencies.
January 24, 2010 Excerpted from
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